We are delighted to announce that we have approved research funding for a new study which will investigate the societal impact for people with epilepsy of losing a driving license. The research will take place at FutureNeuro, led by Prof. Norman Delanty; Consultant Neurologist at Beaumont Hospital and Registrar Dr. Stephen Klaus.
The European Commission has approved the use of a new drug as an add-on therapy for the treatment of Dravet Syndrome in patients 2 years and older.
The Commission’s approval of FINTEPLA (Fenfluramine) will mean that the drug’s manufacturers can now apply to European member states regulatory authorities to make the drug available and/or reimbursed in that country.
- Nearly half of the Irish population admit to having little to no knowledge of epilepsy -
As part of the lead up to #EpilepsyDay, we commissioned a survey of 1,000 members of the general public on their understanding, knowledge & attitudes towards epilepsy.
The survey was conducted online between the 13th - 17th January and received the full 1,000 responses.
The key findings of our survey are as follows:
A new review published in the UK has investigated the use of several common anti-epilepsy drugs (AEDs) during pregnancy.
The review brought together existing data on AED use in pregnancy in order to provide further clarity to women and parents of girls with epilepsy who may be prescribed any of the medications. While the review has been carried out by the UK medicines regulator (MHRA), the findings are of equal relevance to women and girls with epilepsy in Ireland.
We are delighted to have been listed as a local patient partner in the development of a National Public & Patient Involvement (PPI) Network.
A new study recently featured in medical journal, The Lancet Neurology, has reported that seizure activity for people with focal epilepsy could be predicted up to day or more in advance of a seizure.
Updated: 2nd February 2021
The Minister for Health, Deputy Stephen Donnelly has announced that the Medicinal Cannabis Access Programme (MCAP) has been added to the HSE Service Plan for 2021, a move that will enable the funding and delivery of the MCAP this year. The MCAP was established through legislation passed in 2019 but has not been made operational as yet.
The Epilepsy Patient Portal has once again been featured in a leading medical journal, Epilepsy & Behaviour.
In normal times, the end of each year allows for a period of reflection on the months that have passed us by. However, it is fair to say that for many, they will want to skip this end of year look-back and fast forward to January 1st so we can firmly put 2020 in the rear view mirror!