If you are a person who developed epilepsy in childhood – or are a sibling of a person who developed epilepsy in childhood - a new study being conducted by the PENNI research team wants to hear from you (PENNI - Project on educational and neuropsychological outcomes of children with neurological disorders in Ireland).
Our ongoing campaign for reasonable accommodations for students with epilepsy was raised in the Dáil with the Taoiseach last week.
The matter was raised by Deputy Patrick Costello.
New preliminary research data recently published in the medical journal Neurosurgery, has suggested that an epilepsy surgery more commonly used in adults could also be effective in children and young adults with drug-resistant epilepsy.
Over the past year, COVID-19 vaccines have proven to be an effective shield against serious infection. As knowledge of COVID-19 has improved, so too have antiviral treatments that can be used to combat and treat illness from COVID-19 infection.
Our colleagues in Health Research Charities Ireland (HRCI) have recently published a position paper focusing on data and its importance to health research.
The paper has made three key recommendations to policy makers, which are as follows:
It was great to see our International Epilepsy Day Campaign being raised in the Seanad yesterday by Senator Erin McGreehan.
Senator McGreehan highlighted our three key words of Time, Safe, Stay with fellow Senators and went on to support our ongoing campaign around access to Free Travel for people with epilepsy. You can watch Senator McGreehan's contribution in the video below.
While we launched our campaign on Time, Safe, Stay yesterday for #EpilepsyDay, there was also a lot more happening on digital, broadcast & print media to help create awareness – notwithstanding some of the awareness raising efforts that had already taken place in the lead up to the day. Have a flick through the items below if you’d like to listen back or view more.
Three simple words on how to respond to a seizure
Today is International Epilepsy Day (#EpilepsyDay) and Epilepsy Ireland are appealing to the public to learn more about seizure first aid through the key words of TIME – SAFE – STAY.
To mark International Epilepsy Day 2022, Neuraxpharm have launched a series of new comic strips which may be of interest to parents of children with epilepsy.
The strips follow lead character Emma (age 7) and how she approaches her epilepsy in her day-to-day life. You can find the first three chapters of the strip at the links below:
Our ongoing campaign around reasonable accommodations for students with epilepsy during state exams was recently raised in Dáil Eireann with Minister for Education, Deputy Norma Foley.
The matter was raised was by Deputy Jennifer Murnane O’Connor as part of a wider debate on leaving cert reform.
Want the latest epilepsy & Epilepsy Ireland news straight to your inbox?
Keep in touch and sign up for our monthly email update!