Epilepsy Ireland make submission supporting reimbursement of FINTEPLA for Dravet Syndrome
Read about our latest submission to the National Centre for Pharmacoeconomics supporting the reimbursement of FINTEPLA.
Read about our latest submission to the National Centre for Pharmacoeconomics supporting the reimbursement of FINTEPLA.
Media Statement from Department of Social Protection
The Minister for Social Protection, Heather Humphreys TD, today met with the first people to avail of the new Free Travel Pass for persons medically unable to drive.
We have commenced the hiring process for the newly created position of Communications & Research Executive.
This new position will directly contribute to the advancement of our Strategic Plan, with a particular focus on the key aim of increasing the visibility of epilepsy and Epilepsy Ireland.
Back on World Brain Day, an important survey seeking feedback from people living with neurological conditions from across Ireland and the UK was launched. Please share your experiences!
The extended Free Travel scheme comes into effect next week - have you applied?
Learn about the study which saw us surpass the €1.5 million total investment in epilepsy research.
Read about a trial of a new device in the UK - which is showing very positive results.
Yesterday marked a significant milestone for families affected by Sodium Valproate in Ireland, with the appointment of an independent Chair for the inquiry which will investigate the historical licensing and prescribing of Sodium Valproate in Ireland.
Sodium Valproate is an effective anti-seizure medication but it can cause birth defects, neuro-developmental disorders and autism in children whose mothers take such medicines during pregnancy.
A Chairperson has been appointed for the Sodium Valproate Inquiry, as campaigned for by Epilepsy Ireland and OACS Ireland.
The Annual General Meeting of Brainwave, The Irish Epilepsy Association (trading as Epilepsy Ireland) for the year ending 31.12.23 was held on Thursday June 20th via zoom.