News

Read the statement we have issued for Infantile Spasms Awareness Week 2024.

We are delighted for families supporting loved ones with Dravet Syndrome and Lennox-Gastaut Syndrome that FINTEPLA will be approved for reimbursement in the New Year.

We are delighted to have the support of Medtronic for this year's Infantile Spasms Awareness Week.

Can you help assist with this piece of research from our colleagues in St. James's Hospital?

This week is Charity Trustees Week and is a week in which the work & dedication of voluntary boards of Charities across Ireland is acknowledged and recognised. 

Find out more about the key issues we are raising with General Election candidates.

Used any of our services over the past 18 months? Let us know more about your experience!

November 4th – 11th marks #MedSafetyWeek – an annual global campaign which aims to highlight the importance of reporting suspected side effects and safety issues resulting from a person’s medication.

With several successes in recent years, we have announced our new Advocacy Priorities.

Our new campaign on reducing epilepsy-related deaths and SUDEP was raised in the Seanad on SUDEP Action Day. Learn more about this new campaign.