Chair Appointed for Sodium Valproate Inquiry
A Chairperson has been appointed for the Sodium Valproate Inquiry, as campaigned for by Epilepsy Ireland and OACS Ireland.
News
Epilepsy Ireland AGM 2024
The Annual General Meeting of Brainwave, The Irish Epilepsy Association (trading as Epilepsy Ireland) for the year ending 31.12.23 was held on Thursday June 20th via zoom.
New Patient Guides published for Sodium Valproate (Males & Females) and Topiramate
Important new patient information guides have been produced for males and females taking Sodium Valproate; as well as females taking Topiramate.
Today is International Dravet Syndrome Awareness Day
June 23rd is Dravet Syndrome Awareness Day.
While epilepsy is not rare, there are rare subsets of the condition, and Dravet Syndrome is one such type of rare epilepsy.
Reimbursement submission for new medication for Dravet Syndrome & Lennox Gastaut Syndrome – we need your help!
If you are living with Dravet Syndrome or Lennox Gastaut Syndrome - or supporting a loved one with the condition - we need your help.
Epilepsy Ireland publish 2023 Annual Report
Read about our activities across 2023 as we continued our journey towards a society where no person's life is limited by epilepsy.
Today is International CDLK 5 Awareness Day
June 17th is International CDLK 5 Awareness Day. CDLK 5 (or CDD) is a disorder of brain development, characterized by epilepsy and developmental delay.
International Bureau of Epilepsy publish Youth Summit Report
Read about an International report which had a huge contribution from young people with epilepsy in Ireland.
Research Request: NUIG Study on medication adherence in young people with epilepsy
If you're aged between 18 & 28 and living with epilepsy, you might be able to help NUIG with a new piece of research they are conducting.
New Night-Time Economy Accessibility Survey launched by Government
A new survey launched by Government may be of interest to many people with epilepsy.