News

October 16th was SUDEP Action Day - look back on our activities across the day and learn more about SUDEP.

We have written to the Minister of Health regarding the publication of the SUDEP incidence study, calling for co-ordinated action to reduce SUDEP by improving access to specialist care and treatment.

A new study supported by Epilepsy Ireland has identified the incidence of SUDEP in Ireland at 1:1400 - equating to 33 people per year.

We are supporting our colleagues in the International Bureau for Epilepsy (IBE) in disseminating and seeking responses from people with epilepsy and their families in Ireland to the Global Epilepsy Needs Study (GENS). 

The study was previously open in just 15 countries – which garnered 2,000 responses - but has now been opened to everyone with epilepsy (18+) and their caregivers worldwide. 

The sky was certainly is the limit for Louise Daly who recently jumped out of a plane to raise awareness and funds for Epilepsy Ireland. 

Epilepsy Ireland have been announced as the 2024 beneficiaries of the annual Petermarkathon which is run by the renowned Irish salon, Peter Mark. 

Peter Mark has 69 salons across Ireland, and as part of the Petermarkathon, the organisation encourages all salons to take part in fundraising activities in support of a chosen charity. Over the last 13 years, the annual fundraising event has supported a range of organisations 

The Epilepsy Ireland team were delighted to attend the annual Irish Epilepsy League Expert Day in the Gibson Hotel recently. 

The Irish Epilepsy League are the Irish chapter of the International League Against Epilepsy. Their membership comprises of epilepsy healthcare professionals and the epilepsy research and scientific community working in Ireland. 

Epilepsy Ireland are currently recruiting for the position of Community Resource Officer, covering the North Dublin and Kildare region.

Our Community Resource Officers are the front-line of our service and help support people with epilepsy and their families on their journey with the condition – as well as helping to educate local communities about the condition. 

At our recent 2024 National Conference, we were delighted to name the McCarton family from Tallaght as our Volunteers of the Year for 2024!

We are planning a series of events with FutureNeuro as part of the My Moving Brain project - and we want YOUR feedback!