Today is Purple Day® 2023!!
See how you can support our work on our biggest fundraising day of the year!
News
Deferred Exam criteria raised in Dáil
Read more about our ongoing campaign on this matter and watch back a recent debate in the Dáil.
Rivotril Update
Read the latest update we have received regarding this ongoing medication shortage.
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Last chance to enter an incredible fundraiser, which has been supported by some fantastic Irish businesses!!
Sodium Valproate Inquiry delays raised in the Dáil
In the Dáil recently, the delay in establishing the historical inquiry into the licensing and prescribing of Sodium Valproate was raised with the Taoiseach by Deputy Rose Conway-Walsh.
Issues surrounding Sodium Valproate have been in the media recently, following two high-profile High Court cases – which involved multi-million euro settlements for the children impacted.
This Week is Brain Awareness Week 2023!
This week marks Brain Awareness Week 2023!
The week aims to raise awareness of neurological conditions, promote good brain health and to highlight the work of the neurological charities that support the estimated 800,000 people who live with a neurological condition in Ireland today.
Notice on changes to BUCCOLAM® packaging.
We have received queries about recent changes to BUCCOLAM® packaging - view this article for further information and clarification.
Rivotril Resupply expected in Mid-March
With regard to our ongoing contact regarding the shortage of the anti-seizure medication, Rivotril, it has been indicated by the Health Products Regulatory Authority that the medication will be back in stock by mid-March.
The further reply on this matter is below:
Today is Rare Disease Day 2023!
Today is Rare Disease Day. It is estimated that there are over 300,000 people living with a rare disease or a condition in Ireland today – and this day is a day to raise awareness of these conditions; the people who live with them; and the organisations that support them.
IBE Virtual Art Exhibition
In the lead up to #EpilepsyDay, our colleagues in the International Bureau for Epilepsy launched an online art exhibition for people with epilepsy, focussed on the theme of stigma.
We promoted the exhibition on our website and other channels and encouraged those living with epilepsy in Ireland to make a submission – as we know first hand from our members, volunteers and supporters, just how creative they can be.