
SUDEP Action Day is a day when epilepsy organisations across the globe come together to raise awareness of Sudden Unexpected Death in Epilepsy amongst the epilepsy community – and crucially the steps which can be taken to potentially lower the risk of SUDEP.
The day is also an opportunity to remember all of those who have sadly passed away from SUDEP in Ireland and to share their stories to raise further awareness.
The day takes place on October 15th this year. You can see a list of stories shared from families in previous years below. If you have lost a loved one due to SUDEP and would like to take part in our awareness raising activities this year, please reach out to our Advocacy & Communications Manager, Paddy McGeoghegan by emailing pmcgeoghegan@epilepsy.ie.
Thank you to all the families who have shared their loss with us over the years to help educate others on the risks of SUDEP.
- Read Lucy Dineen's testimony about her son Robert on our website for SUDEP Action Day 2020
- Read Arabella Scanlon's testimony about her daughter Brianna on our website for SUDEP Action Day 2021
- Read Bill Linnane's testimony about his sister Lucy on our website for SUDEP Action Day 2021
- Read Katie Young's testimony about her sister Louise on our website for SUDEP Action Day 2022
- Read Megan Corrigan's testimony about her brother Shane on our website for SUDEP Action Day 2022
- Read Jenny Kelly's testimony about her husband Noel on our website for SUDEP Action Day 2023
- Read Orla O'Connor's testimony about her brother Kieran on our website for SUDEP Action Day 2023
- Read the Cormican family's testimony about the loss of their brother and son Tadgh on our website for SUDEP Action Day 2024
- Read Natanya's story about the loss of her twin sister Natasha on our website for SUDEP Action Day 2024
Epilepsy Ireland are also activetly campaigning for the development of a National Strategy to reduce SUDEP and epilepsy-related deaths which has been a feature of our SUDEP Action Day campaigns from 2023 onwards. You can read more about this campaign by visiting the advocacy section of our website via the button below.
Learn more about our campaign