The HSE’s National Genetics and Genomics Office has partnered with Amárach Research to carry out a communications research project aimed at better understanding what patients who are referred to genetic and genomic services, and their families, need to know to help them better navigate services.
The knowledge gained will be used to work towards an improved patient experience of using genetic and genomic services.
We are seeking volunteers to test our new GP Consultation guide. Can you help?
After a brief hiatus in 2023, where we instead held public facing events as part of the hugely successful International Epilepsy Congress arranged by the International Bureau for Epilepsy and the International League Against Epilepsy, this year our Epilepsy Ireland led National Conference is back!
You've seen our new campaign promoting #TimeSafeStay for #EpilepsyDay...but read this article for more on some of the things you might have missed!
We recently met with the Minister to discuss the expansion of the Free Travel scheme to mark #EpilepsyDay!
Read our statement issued to the media about our #EpilepsyDay 2024 campaign!
In a welcome development for campaigners in the UK, a new report from the Patient Safety Commissioner has recommended that a redress scheme be set up quickly to help support families who have been impacted by Sodium Valproate.
Read more about our work with SUDEP Action as a result of the incredible Cycle for Shane.
An Epilepsy Ireland supported study is seeking feedback from women with epilepsy as they continue their important research.
EpiKNOW is currently investigating the health information and resource needs of women with epilepsy in Ireland, from preconception to postpartum.
Following an ongoing review of new data, the European Medicines agency’s Pharmacovigilance Risk Assessment Committee (PRAC) have announced new precautionary safety measures for the treatment of males with sodium valproate.