News

At the meetng of Donegal County Council earlier this week, Councillors supported a motion on the issue of Free Travel for People with epilepsy. 

The motion was brought forward by Cllr. Jimmy Kavanagh. Cllr. Kavanagh will be bringing forward a motion on the issue of Reasonable Accommodations for students with epilepsy who may have a seizure during state examinations at a future sitting of the council

A new anti-epileptic drug has received marketing authorisation from the European Commission to allow the manufacturers to make the drug available in member states. 

ONTOZRY® (also know as Cenobamate) is a medication indicated for use in the treatment of drug-resistant focal-onset seizures in adults. 

We have published a new mini-site on the subject of Medicinal Cannabis and epilepsy.  This is a topic which is of great interest to many people with epilepsy and parents of children of epilepsy.

Our mini-site has aimed to provide clear and concise information for people on the topic and discusses the evidence that has emerged over the last number of years; access programmes that currently exist and other relevant information on the subject. 

As you know, in the lead up to Purple Day® 2021, we launched the #PurplePatchForPurpleDay challenge. 

This challenge asked people to stay safe in lockdown and do a little bit of knitting for the person with epilepsy in their lives or to just lend a hand to help raise awareness in the lead up to Purple Day®.

All we can say is WOW!!!

Procurement Leaders have today announced a year-long partnership with Epilepsy Ireland in support of our work on behalf of people with epilepsy across Ireland. 

The Irish Epilepsy Leage (IEL) Council - the Irish branch of the International League Against Epilepsy - has launched a new iniative aimed at recognising and rewarding excellence in epilepsy research conducted in Ireland. 

We are delighted to announce that our Training For Success Course Manager, Maire Tansey, has been acknowledged in the European Federation of Neurology Associations Advocacy (EFNA) Advocacy Awards.

The biannual awards recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe. The topic this year was ‘Action against stigma’.

To mark Brain Awareness Week 2021, our colleagues in the Neurological Alliance of Ireland(NAI) have launched a report on the resourcing of neurology services in Ireland. 

The report is an update to a similar paper published 5 years ago and offers an update on how access to services currently stand. Unfortunately, the report notes that there is significant progress to be made when it comes to improving access to neurological services in Ireland.

The National Centre for Pharmacoeconomics (NCPE) have issued their recommendation to the HSE regarding the reimbursement of Epidyolex.

Epidyolex is a cannabidiol (CBD) medication which through clinical trials has been shown to have a positive impact in the treatment of two rare epilepsies – namely Lennox Gastaut Syndrome & Dravet Syndrome.