Further to our recent notice on the supply on of Epanutin (you can see our original notice by visiting the 'News' section of our website), we have received a response from the Health Products Regulatory Authority (HPRA) regarding this shortage. You can see this reply below:
The company has not informed us of any changes to the resupply date of Epanutin 50 mg Hard Capsules. The shortage is due to a manufacturing delay affecting multiple countries.
We are due to meet with the State Exams Commission in the New Year. Find out why.
We and our colleagues in OACS Ireland are pleased to inform our members and service users that there have been two positive developments recently regarding our ongoing joint campaign on Sodium Valproate (Epilim).
Our Free Travel campaign continues to be raised in the Dáil.
We have been notified of a further shortage of the Anti-Seizure Medication Rivotril.
December 1st - 7th is Infantile Spasms Awareness Week. Learn more about the week and the key message of STOP.
Our Annual Raffle took place on the 25th of November, and we would like to thank everyone who took the time to enter our draw.
Our raffle is a vital source of fundraised income and while final amounts raised are still being calculated, circa €10k has been raised in support of our work via the raffle – a fantastic amount in what are trying financial times for so many.
This week is Science Week! Did you know we have made some major epilepsy research investments this year?
Want to help shape our #EpilepsyDay 2023 campaign? Take our survey!
Tickets are now on sale for a special night of celebration, set to take place in the Talbot Hotel, Wexford Town on January 7th, in memory of the late Louise Young.
Louise, from Murrintown, passed away suddenly on January 8th, 2021, from Sudden Unexpected Death in Epilepsy. She was just 24 years old.
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