Our colleagues in the International Consortium for Health Outcomes Measurement (ICHOM)– an international non-profit organisation that aims to improve global healthcare – is seeking feedback from adults living with epilepsy in Ireland as part of their continuing project on developing a minimum set of outcomes for people living with epilepsy.
Further to our recent notice on the supply on of Epanutin (you can see our original notice by visiting the 'News' section of our website), we have received a response from the Health Products Regulatory Authority (HPRA) regarding this shortage. You can see this reply below:
Read our tips for people with epilepsy to bear in mind during the festive period and see details of our Christmas closing arrangements.
We are due to meet with the State Exams Commission in the New Year. Find out why.
We and our colleagues in OACS Ireland are pleased to inform our members and service users that there have been two positive developments recently regarding our ongoing joint campaign on Sodium Valproate (Epilim).
Our Free Travel campaign continues to be raised in the Dáil.
We have been notified of a further shortage of the Anti-Seizure Medication Rivotril.
December 1st - 7th is Infantile Spasms Awareness Week. Learn more about the week and the key message of STOP.
Our Annual Raffle took place on the 25th of November, and we would like to thank everyone who took the time to enter our draw.
Our raffle is a vital source of fundraised income and while final amounts raised are still being calculated, circa €10k has been raised in support of our work via the raffle – a fantastic amount in what are trying financial times for so many.
This week is Science Week! Did you know we have made some major epilepsy research investments this year?