News

#ISAW2023 may be over but you can still learn more about Infantile Spasms.

We are delighted to have our Patron, Rick O’Shea, once again showing his support for the work of Epilepsy Ireland by selecting us as one of the beneficiaries of the annual Rick O’Shea Book Club Xmas Appeal!

November 6th – 12th marks #MedSafetyWeek – an annual global campaign which aims to highlight the importance of reporting suspected side effects and safety issues resulting from a person’s medication.

The introduction of a Pregnancy Prevention Programme for Topiramate has begun to be implemented. Read more about this important development.

Can you help researchers in the EMA with their study?

Following the positive development in Budget 24, further details on the amended scheme and when it will be implemented by has been discussed in the Dáil.

Read about a new document produced by the Health Products Regulatory Authority Patient Forum, which promotes the importance of reporting side effects.

October 18th marked SUDEP Action Day 2023. If you missed any of our activities on the day, find out what we were highlighting and why.

Read the initial findings from the survey we launched in advance of #SUDEPActionDay2023, regarding patient awareness of SUDEP in Ireland.

Following the budget announcement to extend the Free Travel scheme, see what Minister Heather Humphreys had to say on the changes in the Dáil and the Seanad.