Today is International CDLK 5 Awareness Day
June 17th is International CDLK 5 Awareness Day. CDLK 5 (or CDD) is a disorder of brain development, characterized by epilepsy and developmental delay.
News
International Bureau of Epilepsy publish Youth Summit Report
Read about an International report which had a huge contribution from young people with epilepsy in Ireland.
Research Request: NUIG Study on medication adherence in young people with epilepsy
If you're aged between 18 & 28 and living with epilepsy, you might be able to help NUIG with a new piece of research they are conducting.
New Night-Time Economy Accessibility Survey launched by Government
A new survey launched by Government may be of interest to many people with epilepsy.
EI raise implementation of IGAP with EU Election Candidates
In advance of the European Elections on June 7th, we have contacted candidates around the implementation of the Intersectoral Global Action Plan on Epilepsy.
Epilepsy Ireland Publish 'Use of Funds' statement for 2023
We have published our 'Use of Funds' statement for 2023 - which outlines to our members, service users, volunteers, supporters, donors and the public how we raise and use our income.
New research reveals concerning knowledge gap regarding Seizure First Aid
86% of the public believe knowing seizure first aid is important - but just 28% say they would know how to respond to a seizure.
New Seizure First Aid posters published for #EpilepsyWeek
Download our new seizure first aid posters which highlight those important words of TIME, SAFE, STAY!
Learn more about TSC on TSC Awareness day
May 15th marks Tuberous Sclerosis Complex (TSC) global awareness day.
Meta Fundraising Tools to end – we need your support!
With Facebook Fundraising tools set to end at the end of the month, now more than ever, we need your support!