New developments on EI’s Free Travel campaign
Epilepsy Ireland recently met again with the Minister for Social Protection and her officials regarding our proposals to improve access to the Free Travel scheme for people with epilepsy.
News
Research Request: Northampton University Study wants to learn more about the anomalous experiences of people with epilepsy
A new study being conducted by Northampton University wants your help with their new research.
The study is trying to understand more about the anomalous experiences of people with epilepsy. In previous studies on this issue, some people with epilepsy have reported experiencing déjá-vu, hallucinations, out of body experiences, the sense of a spiritual presence - amongst other unusual or irregular experiences that they associate with their epilepsy/seizures.
HPRA Communication issued on paternal exposure to Valproate
Further to our recent updates regarding a European review of data on the potential risk of neurodevelopmental disorders in children conceived by fathers who are taking Sodium Valproate, we can confirm a ‘Dear Healthcare Professional’ communication has been issued by the Health Products Regulatory Authority (HPRA) to clinicians across Ireland regarding this ongoing review.
Epilepsy Ireland meet with Taoiseach at State Reception to mark #IEC2023
Watch the Taoiseach's opening address to delegates at #IEC2023 and read correspondence we have sent to the Taoiseach, following a State Reception to mark #IEC2023.
New Technology developed in Cork could help to treat drug-resistant epilepsy.
A new discovery by researchers in Cork could lead to new targeted treatments for Drug-resistant epilepsy.
Pregnancy Prevention Programme to be introduced for Anti-seizure medication Topiramate (Topamax)
Following a review of three recent studies, the European Medicines Agency’s Pharmacovigilance Risk Assessment Committee (PRAC) has recommended that a Pregnancy Prevention Programme (PPP) be introduced around the use of the Anti-Seizure Medication Topiramate (Topamax).
Epilepsy Ireland to meet with Minister for Social Protection on Free Travel.
We will be meeting with the Minister for Social Protection in the weeks following #IEC2023.
Major international genetic study of epilepsy involving Irish researchers published on eve of #IEC2023
A new international study has highlighted areas of DNA that might be involved in the development of epilepsy.
Goodbye and Thank you Training for Success!
For the first time in almost 25 years, we will be moving to the future without Training for Success (TFS) as part of our service.
Back to School 2023 with Epilepsy Ireland!
It’s back to school season so we wanted to remind people how Epilepsy Ireland help support you, your child, and their school with their return to the classroom and provide some important information on epilepsy and school.
First and foremost, it is recommended that any child with epilepsy who could have seizures in school has an individualised Care Plan. These plans should cover: