With over 45,000 people living with epilepsy in Ireland, we are encouraging all people with epilepsy and/or their families to complete an important survey which is seeking feedback from people with neurological conditions across Ireland and the UK.
The MyNeuro survey is seeking to learn more about what it like to live with a neurological condition – with feedback being sought from those living with neurological conditions – including young people and children – as well as from parents/carers of those living with neurological conditions.
The survey was first launched on World Brain Day 2024 and the dissemation of the survey in Ireland is being led by our colleagues in the Neurological Alliance of Ireland (NAI). As a member of the NAI, we are eager that the voice of the epilepsy community in Ireland is heard as part of this important survey in the hope that it will provide vital insights into what life is like with the condition in Ireland, as well as identifying potential pathways to improve the lives of those with epilepsy and all neurological conditions in Ireland.
The survey will remain open until November 15th 2024 so please submit your responses without delay! The survey takes approximately 20 minutes to complete and each survey is accessible via the button below:
If you have any further questions or queries regarding this survey, please email advocacy@nai.ie or you can visit the NAI website to see Frequently Asked Questions about this survey.
Thank you in advance for your time in completing this important survey. If you need any information or support on your or your loved one’s journey with epilepsy, please do not hesitate to contact your local Community Resource Officer. You can find their details by visiting the ‘Our Local Services’ section of our website.