As identified by our members, supporters and service users, one of Epilepsy Ireland’s key advocacy priorities for the coming years is the inclusion of Epilepsy on the Chronic Disease Management Programme (CDMP).
The CDMP represents a new approach in Ireland to working with patients to manage their healthcare. It has brought the care for chronic disease further into the community and closer to the patient, and over time is expected to reduce hospital attendance by patients with one or more of the specified conditions.
To help build data around our campaign to have epilepsy added to the CDMP, we have been working with the Department of General Practice, University College Cork, and a GP in a large midlands practice on a project to examine the experience of people with epilepsy in engaging with their GPs around their epilepsy. In addition, we have also developed a GP checklist - to be used by both patients and GPs alike to help aid discussions around epilepsy in a GP setting.
To help amplify our campaign around adding epilepsy to the CDMP, in collaboration with our partners at UCC, we have organised this special event to begin the process of engaging with key stakeholders in the care of people with epilepsy around this campaign. With a packed agenda, this event will highlight why epilepsy should be added to the CDMP and act as a launching pad to officially begin this campaign.
We are inviting people with epilepsy, their families, healthcare professionals and elected representative to join us at this event and discuss this campaign. The full agenda as well as registration details are included below.
We look forward to welcoming you on the day and to achieving progress on this most important campaign.
WHO?
This event is for people with epilepsy, their families, healthcare professionals (particularly GPs), elected representatives and policy makers.
WHEN?
This event will take place in-person on Friday 9th May, 10:00am-1.30pm.
WHERE?
The Hub, University College Cork, Cork.
REGISTRATION
To register for this event, please visit our Eventbrite page via the button below or at the end of this page:
REGISTER NOW
AGENDA
The agenda for the event is as follows - please note this may be subject to change.
- 10:00am - Registration & Tea/Coffee
- 10:30am - Welcome Address - Professor Henry Smithson
- 10:40am - Update on University College Cork & Epilepsy Ireland research project - Dr. Cormac Sheehan (University College Cork & HSE)
- 10:55am - A GP's experience of epilepsy care in the community - Dr. Sharon McDonald
- 11:15am - Pathways of care for people with epilepsy - Dr. Ged O'Connor, Neurologist, Cork University Hospital
- 11:30am - The role of an Avanced Nurse Practitioner in hospital/community settings - ANP Sandra Moloney, Cork University Hospital
- 11:45am - Comfort Break
- 11:55am - Pathway of care of women with epilepsy - Sinéad Murphy, Registered Advance Nurse Practitioner
- 12.10pm - Me, My epilepsy and my GP - Deputy Eoghan Kenny
- 12.25pm - Epilepsy Ireland supports in the community - Niamh Jones, Epilepsy Ireland Community Resource Officer
- 12.40pm - Q&A / Concluding remarks - Prof Henry Smithson
- 1.00pm - Networking and Light Lunch
- 1.30pm - Finish
Further Information
- Some further information on advocacy campaign to add epilepsy to the CDMP can be found by visiting the 'Advocacy' section of our website
- The GP checklist we have developed in collaboration with UCC can be found by visiting the 'For GPs' section of our website
- If you need any support or information on your or your loved one's journey with epilepsy, please do not hesitate to contact your local Community Resource Officer. You can find their details by visiting the 'Our Local Service' section of our website.
- Should you have any other queries about this event, please contact Epilepsy Ireland Advocacy & Communications Manger, Paddy McGeogehgan by emailing pmcgeoghegan@epilepsy.ie.