If you are a woman with epilepsy, or a family member of a women with epilepsy, you might be interested in helping a study which we believe may have the potential to make a huge impact on the future care of women with epilepsy in Ireland, who are planning pregnancies in the future.
To date, no study has examined the health information needs of women with epilepsy and their families from preconception through to postpartum in Ireland. The EPIKNOW study will change that.
The study is now in a crucial phase of its investigations and as part of this, researchers are looking to speak to women with epilepsy and/or their family members to discuss the information that has been provided to them during this period of their lives (if any) and seek their perspective on where they believe information gaps exist.
As noted, we believe this study has the potential to create a lasting legacy for women with epilepsy in Ireland – which is why we have invested directly in this research – but it is crucial that the researchers here from as many women with epilepsy as possible so we are making a direct appeal to women with epilepsy and/or their family members to please consider sharing their experiences with EPIKNOW.
If you would like to volunteer to take part or have any further questions about this research, please contact Dr. Jade Parnell by emailing jadeparnell@rcsi.com.
If you are a women with epilepsy and need any support or information on your journey with epilepsy, please do not hesitate to contact your local Community Resource Officer. You can find their details by visiting the ‘Our Local Services’ section of our website.
Research Request Summary
- The Epiknow Study is seeking to speak with women with epilepsy and/or their family members who are over 18; have lived or currently live in Ireland; have had children, are pregnant or planning to have children
- If you are interested in taking part, please contact jadeparnell@rcsi.com.
- Contributions to the study will be made via online interview with the researcher, taking a maximum of 1 hour.