Learn more about TSC on TSC Awareness day
May 15th marks Tuberous Sclerosis Complex (TSC) global awareness day.
News
Meta Fundraising Tools to end – we need your support!
At the end of April, Epilepsy Ireland and every other charitable organisation across Ireland received the shocking news that Facebook & Instagram will discontinue fundraising tools for charities in the European Economic Area (EEA) at the end of June.
Free Travel Applications Officially open
With it being #EpilepsyWeek, it's important to remind everyone to get their applications in for the newly expanded Free Travel scheme - as advocated for by Epilepsy Ireland!
Study suggests link between Sleep Apnoea and development of Epilepsy in older adults
An interesting new study from the United States has further investigated a possible link between Sleep Apnoea and the development of epilepsy in older adults.
Upcoming Free Travel Changes discussed in Dáil
With the long-awaited changes to the Free Travel scheme due to come into effect in July – advocated for by Epilepsy Ireland – the impending changes were recently discussed in the Dail.
The matter was raised by Deputy Ciarán Cannon with Minister for Social Protection, Deputy Heather Humphreys – with Deputy Cannon in particular querying details on the application process which will be involved.
Important Survey - Are you a woman with epilepsy taking Sodium Valproate (Epilim)?
We have issued a very important survey as part of our continuing work associated with the anti-seizure medication, Sodium Valproate(Epilim).
EPIKNOW Study seeking volunteers!
If you are a woman with epilepsy, or a family member of a women with epilepsy, you might be interested in helping a study which we believe may have the potential to make a huge impact on the future care of women with epilepsy in Ireland, who are planning pregnancies in the future.
To date, no study has examined the health information needs of women with epilepsy and their families from preconception through to postpartum in Ireland. The EPIKNOW study will change that.
HSE seeking feedback from young people on experience of transition from paediatric to adult services.
People with epilepsy and their families may be able to provide invaluable feedback to this new survey from the HSE on the subject of transition between services.
Sodium Valproate Inquiry Chair Update
The Department of Health are seeking to appoint a Chairperson of the long-awaited Sodium Valproate inquiry via the Public Appointments Service.
HRCI Launch General Election Manifesto
Our colleagues in the HRCI have launched their General Election Manifesto. Find out more about their calls.